Caregiver caring for their child with autism.

Caregiving For Your Child, Young or Old, with Autism

A recent report from the Centers for Disease Control (CDC) shows one in 36 (2.8%) 8-year-old children in the U.S. have been identified with autism spectrum disorder (ASD). Furthermore, according to Autism Speaks, 80% of adults with autism live at home and receive support from a caregiver. In other words, if you’re taking care of a child with autism, no matter how old they are, you’re not alone. There are organizations and groups, like Careforth, ready to provide assistance and support on your journey.

What Is Autism?

While the exact cause of ASD is unknown, it affects everyone differently. People with ASD often have trouble with communication and behavior because their brains work differently. This can mean things like finding it hard to make eye contact or understand social cues and needing help with everyday tasks.  Sometimes it causes repetitive movements or speech, a strong need to follow routines, or unusual reactions to sensory input. Autism Speaks reports that on average, autism is diagnosed around age 5, with signs appearing by age 2 or 3. 

Tips on Caring for Your Autistic Child

• Early intervention can make a big difference. Seeking support can provide you and your child with essential tools and resources for effective management.

• Learn about autism. The more you know about ASD, the better you’ll be able to make informed decisions for your child.

• Know your child. Find out what triggers disruptive behaviors and what causes positive responses. You’ll know how to avoid or adjust to situations before they occur. You’ll also discover constructive ways to connect with them.

• Create a safe and consistent environment. According to Autism Speaks, inconsistent routines or schedules can be a source of distress for children with autism.

• Find help and support. You don’t have to do everything on your own, and it’s important to take care of yourself. The following section has some options to help you and your child.

Finding Support and Resources for Caring for a Child with Autism

Caring for a child with autism can be both rewarding and challenging. Fortunately, you’re not alone on this journey. Here are some valuable resources to help you navigate and support your child’s needs: 

Join a parents’ autism group: Whether on the internet or in person, meeting and talking with other parents can offer lots of insights and emotional support.

Online resources for autism: Sites like Autism Speaks, Autism Resource Center, and Autism Society offer a wealth of information, from educational resources to community forums.

Professional Assistance: Seeking guidance from healthcare professionals, therapists, or educators specializing in autism can offer tailored strategies and interventions to support your child’s development and well-being.

Financial Support: Caring for a child with ASD may come with financial challenges. Organizations like Careforth have been assisting caregivers for years, providing support, resources, and even financial assistance. Explore what options are available to you and your family.

Careforth Cares for Caregivers Like You

Careforth’s expert team of nurses, social workers, care managers, and coaches are here to help you navigate these caregiving resources and find the support that’s right for you. Their commitment ensures that you feel supported at every turn of your caregiving journey, empowering you to confidently care for your child at home.

Visit the How We Help page on our site or contact uscontact us to learn more about how Careforth supports caregivers like you.

Caregiving for A Child with Autism FAQs

How to take care of a child with autism?

Caring for someone with autism varies based on their unique needs. Establish a daily routine and use simple language. Be patient and use visuals for communication. Focus on their interests to engage them, create a calm environment, and celebrate achievements to build confidence.


What are the duties of caring for a child with autism?

A caregiver helps their loved one by making sure they get the support they need to maintain a high-quality life. Caregiving may include coordinating appointments, managing medications, and supporting activities of daily living (ADLs) such as feeding and bathing.


Can I be a caregiver for my child with autism?

Autism Speaks reports that 4 out of every 5 adults with autism live at home with a caregiver. Whether you’re caring for a child, young or old, with autism, Careforth can help you understand your options for accessing financial and coaching support tailored to your child’s needs.


How do caregivers get paid for caring for their child with autism?

Caregiving can be costly, but with government-funded support programs, families may qualify for financial assistance. Careforth serves Medicaid-eligible individuals and their families in certain states. Find out if you’re eligible for support and pay through Structured Family Caregiving (SFC).


How do I apply to be a caregiver for my child with autism?

Careforth has step-by-step instructions to explain caregiving financial support options based on where you live and the type of support you provide. Check here to see if Careforth’s services are available in your state.


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