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They say, “Cancer is a full-time job.” Of course that’s not exactly true, especially given advances in treatments, but it’s not far from the truth. There is a concept in healthcare called “burden of treatment” – the work of being a patient – and for cancer patients, it is a lot of work.
Denise and her mother When I tell people that I launched CareGiving.com in 1996, I often hear, “You must have started your work because of a personal experience.” In reality, my personal caregiving story didn’t begin until March 2004 when my parents returned home early from a vacation to San Diego after my…
Jerry and her father I’m Jerri, and he’s Jerry. I’m 42, he’s 67. I became his caregiver by circumstance, not by choice. “Caregiver” is a title that was forged upon me, with no regard for the roles I already had in my life (and there are many). There was no request, no consideration,…
Brogan with her sister, Paige You never forget the day your parents tell you that your sister has been diagnosed with Angelman Syndrome. As a three-year-old girl, you have absolutely no idea that this moment will change your entire life. Forever. You have no idea that this means your sister will spend…
Lois and her mother “I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” – Maya Angelou You know Thanksgiving has always been my favorite holiday, Mom. The gold and orange colors of autumn dominating the landscape’s palette,…
I didn’t know I wanted to become a nurse. I was 19 when I took a free course through Boston Public Schools to earn my Licensed Practical Nursing license. From there I worked in many different fields, beginning at the Peter Bent Brigham Hospital helping babies all the way to geriatric care. I…
“I’m never gonna know what you go through All the things I say or do All the hurt and all the pain One thing selfishly remains
Sipping coffee early this morning, I watch my 84-year-old mother eating a piece of toast with butter. Her left hand shakes softly, she’s focused on the buttery corner, crunchy and warm, careful to not drop unnecessary crumbs. Lidia is always extra careful with crumbs; the house must remain clean! I ask myself a…
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